eastern healAging parents worry about disabled children

Youre hearing about more and more people finding themselves, because of the lack of options and choices … in places that they dont belong.

Jones says community care home operators in the province have told her they need more funding and properly trained staff.

Client indicated respite worker knocked client down, pulled hair and smacked client, says another 2009 complaint filed with Eastern Health. The document says the respite worker was fired.

Who will provide that loving, constant attention into the future is the question that gnaws at Drover and other parents like her across Canada.

But McIsaac says amounts such as $1.1 million to increase monthly home support subsidies are token measures.

I have gotten sick here at night very, very sick — and I wouldnt phone an ambulance or a doctor because, God, if they put me in a hospital what am I going to do? The one thing I dont want is for Graham to go in foster care or an alternate care home. More than anything, Drover wants Graham to be able to stay in the only home he has ever known with the help of 24-hour care.

Staff person at an Individual Living Arrangement allegedly hit a resident in the ce, says one 2009 report from Eastern Health, the provinces largest health authority. The documents say charges were laid with the RCMP and the agency worker was fired. Legal process is ongoing, the records say.

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Provincial officials have told her its out of the question because of the cost, she says. But Drover says she will fight for what she called her sons basic rights.

The most recent provincial budget for Newfoundland and Labrador commits new money for long-term care and community support.

Theres a precedent for it.

If somebody is in their 40s, they have no place being in a personal care home or a nursing cility. Thats an inappropriate public response to the needs of people.

I am aware that more people are being put into long-term care cilities at a younger age because there arent other options for them, she says.

In Newfoundland and Labrador, the search for details on abuse of vulnerable residents under adult protection required access to information requests to four different health authorities.

Jerome Kennedy, the provinces health and community services minister, declined through a spokesman to comment on either the documents or concerns raised by milies aeastern healAging parents worry about disabled childrennd advocates.

Drover fears that Graham could wind up being misplaced with seniors in a nursing home or among virtual strangers in the community.

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The documents also say several abuse victims wound up being removed and placed in long-term care or nursing homes.

That is exactly how I feel. I love him dearly.

When the stress and uncertainty of caring for her adult son becomes too much, Louise Drover makes an agonized plea to God.

Ottawa has provided some affordable housing help that has made a difference in various provinces, Weeks says.

This is where he has lived all his life. This is where his memories are.

The records describe repeated incidents around the province where alternate mily care homes were closed or stayed open with conditions after reports of physical and financial abuse.

Liberal Leader Yvonne Jones says the problem is very real.

The condition aptly named for its discoverer, British pediatrician Harry Angelman, gives Graham an unusually sweet and happy personality.

Many parents talked about the joys of having children who are dearly loved in their communities, Weeks said from Charlottetown.

He cannot speak for himself, so I will have to be his voice. And what Im saying is that he deserves to have a choice to live at home.

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I think its ir to say that across the country there is a need to invest more money for sure into supporting people to live in their own homes in the community.

Lori Weeks, an associate professor affiliated with the Centre for Health and Aging at the University of Prince Edward Island, has researched milies caring for loved ones with intellectual disabilities.

She co-authored a study published in September 2009 of 132 milies in P.E.I., including in-depth interviews with 33 parents.

Drover, 61, lives in Blaketown, on Newfoundlands Avalon Peninsula, with her son, Graham. He is now 26, but a neuro-genetic disorder called Angelman Syndrome stalled his intellectual development at about the age of four.

Most parents hope that if they get sick or frail, their child will live in a small supervised home with a mily environment not an institutional feel, she says.

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If something happens to her, Drover wants Graham to at least have the comfort of home.

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Liberal Leader Yvonne Jones said milies with disabled members require support to maintain a community connection. I know that there are younger people that are being hospitalized until other forms of care can be found for them. And Im also aware that many milies feel that they dont have the support to care for their loved ones for a long or extended period of time.

Louise Drover desperately wants to convince provincial officials that her son Graham should get help to stay in the house that was specially built for him. He has panicked during iled attempts to have him spend the night with mily or friends, she says.

Its nowhere near what we need.

Otherwise, there is a threat that we will repeat history and start to see people moving back into institutional and partly institutional types of living arrangements like personal care homes and nursing care homes. McIsaac says in Newfoundland and Labrador a province that was a national leader in the shift to community living from institutions there are signs of backsliding.

Ive seen really good homes and Ive seen some that werent that good. I would not want my son there, she says.

Its the right of people with disabilities to live in communities with the support they need to enjoy life as a full citizen, he adds.

Copies of reports received by The Canadian Press outlined 23 complaints across the province of physical, ual, emotional or financial abuse that were deemed founded and investigated in 2009 and 2010.

I think its an unqualified success in terms of nobody ever asks to go back or to reopen those types of cilities, he says.

He does not speak and cant walk r on his own. He is prone to pounding on windows if he gets excited, so his mily home is equipped with shatter-proof glass. He will need 24-hour care for the rest of his life.

As for 24-hour care, Jones says the province has funded such requests in the past to allow people with disabilities to live independently.

But McIsaac warns that recent progress is threatened by a lack of government funding.

Others wish for a long-term care home that offers both senior services and programs geared for younger people with disabilities, so the mily could stay together.

eastern healAging parents worry about disabled children,It comes to a point at nighttime when you have to pray that if nothing works out, that God will take him before he takes me. And thats a hard thing to have to pray at night.

Most complaints involve allegations that caregivers abused clients who were sometimes their own mily members. But there are also several complaints of incidents between residents or attacks on staff. Most of the reports involved what the province calls alternate mily care homes or private residences. Specific locations were not disclosed for privacy reasons.

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They are unable to continue to provide an adequate level of care to persons with physical and intellectual disabilities without getting more supports from the government.

She has been a single parent to Graham since her huseastern health newfoundland and labradorband John died of a massive heart attack in 2009 at the age of 59. She has few mily members who live close enough to help, she said.

Theres definitely a huge need for more financial support for these milies.

A St. Johns man accused of shaking his own baby was taken to a cell Tuesday after he was found guilty of aggravated assault. more

But they also described the financial and emotional stress of raising kids who will never leave home.

Police say alcohol may have been a ctor in a tal car crash near the eastern Newfoundland community in the St. Marys Bay area Monday afternoon. more

Ray McIsaac, acting president of the Newfoundland and Labrador Association for Community Living, says the province has come a long way since people with disabilities were shut away in institutions.

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